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My family and I are appealing to your good heart to help us in our time of dire need. I, my two brothers and sister, for reasons that defy medical explanation have all been diagnosed with a very rare genetic disease called Neurofibromatosis Type 2 (NF2). NF2 is characterized by the development of non-cancerous tumors in the region of the cranial nerve VIII, which is the auditory-vestibular nerve that transmits sensory information from the inner ear to the brain. Depending on the location, the tumors can affect control, balance, speech, eye movements, facial sensations and most importantly, hearing. Although there is no cure for NF2, the tumors can be surgically removed to stop them from further affecting our health.


Currently, I (Ashley) have already lost my hearing on my left ear and my right ear has moderate hearing loss. It also affected my balance, which is the reason people constantly think of me as a clumsy person and there are times when I would feel very dizzy. My brother, Niccolo, after undergoing surgery has lost his hearing on his right ear and the same thing may also happen to his left ear. My sister Marie had to undergo an operation on her spinal column, when tumors grew there, to prevent her from being paraplegic. Her left extremities were affected are now not as strong as they were before. Lyndon’s case was a bit different from us. His tumors occurred unilaterally, but it is still continuously growing. He’s also proud that he only has one tumor whereas we have two or more.



In most cases, NF2 only occur unilaterally. However, it may also occur bilaterally, which is what happened in our case. And though NF2 is transferred genetically, for four children of the same parents to all inherit the disease is unheard of. Our mother, from whose side we inherited NF2, had already passed away at the age of 27, two months after giving birth to my youngest brother, Lyndon. At the time of our mom’s death, our dad sunk into depression. He couldn’t work anymore.



We are now under the care of our grandparents who have no financial means to meet the medical costs of the operations and MRI, which we have to undergo every six months. For this reason, we are appealing to you to donate broken and unrepairable appliances that are ready to be disposed of to us. My grandparents will collect the copper in them and then sell it to junk shops to raise money for the treatments. The money will be deposited to our bank account.



Please accept our heartfelt gratitude and May God greatly enrich you in all your endeavors. Kindly direct all donations to Linda Remigio. Residence phone # 8476820. Cellphone # 09152008242. #10 Mapua St., Phase 4, Pacita 1, San Pedro, Laguna


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Blog EntryWE Say
Dondon's surgery was supposed to be yesterday. On Monday night though, the PGH's sterilization machine thingie broke, so they rescheduled the surgery to be done on Thursday. But when Dra. Chiong went to see Dondon yesterday, she noticed that he had... more
Previous blog entries:
Jan 6-prayers needed
Oct 23-long time no update haha
Jul 23-o haii
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Photo AlbumWE Saw
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Dondon's surgery
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MRI results
5 Photos, 1 comment
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Brothers & Sisters
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DonDon
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NoteWE Hear What You Say
   
hearyeah wrote on May 11, '10
I'm inviting everyone..
(enlarge)

I always wanted to organize a fund raising event.. i can't but I CAN, right? My goal for this event is: 'everyone should be happy'.. Happy tummy because of the delicious foods.. Happy spirit because of the fun during the event.. Happy soul because you help someone & be a blessing to me.. and of course HAPPY faces because we're all happy happy joy joy! Yey!

I'm also working on new items to sell, need to raise funds for my forever NF2.. Some of the proceeds will go to MAY Birthday Project (gift-giving at PGH) the following week..

Save the date, May 14 - 7:30pm at Makati Park & Garden in Guadalupe.. I made sure that the food is delicious.. :) There's also an open bar & raffle draw during the program.. ;)

For tickets, please contact my mom:
Madge Yarza - 09272459400

Ticket is P1,500 per head
puhuachina wrote on Apr 13, '10
Get well soon………….I will pray……..
Best neurosurgical hospital
ladycathie wrote on Dec 29, '09
for your cakes and pastry needs, pls visit




ALWAYS TAKE CAKE FOUR TURTLES... GOD BLESS:)
bossjamie wrote on Aug 27, '09
i feel sorry for myself coz i've read your story more than a year late, but if i had not, i may not have the same passion for you... I dont have money, but I will pray for you, believe me, I will... sana may iba pa kong maitulong aside from my prayers....
sandisanjit wrote on Jun 28, '09
Hi! may ginawa akong isang video para sa inyo at paumanhin kumuha ako ng picture.. dito nyo po siya makikita... http://sandijmartin.wordpress.com/2009/06/28/huwag-kang-mangamba-aking-kaibigan/
katrinahears wrote on Jun 3, '09
hELLO! My Prayers are with you!
store4anja wrote on May 27, '09
Hello! I wish you all the best! Thanks for viewing my site. Will be praying for you =)
cameraclick wrote on May 19, '09
Keep the faith! God Bless :)
yengster wrote on May 18, '09
love you little turtles:)
tack wrote on Aug 21, '08
happy birthday ashley! ay di pala kita nabati dito marie nung birthday mo.. super belated din! para fair.. haha!. :*mwah*
emestyneingelle wrote on Jul 20, '08
haha. you just take it easy aight? im fine though, no need to worry. thanks still =)
emestyneingelle wrote on Jul 17, '08
how are you?
emestyneingelle wrote on Jul 12, '08
MyHotComments.com
MyHotComments take care =)
cakefashion wrote on Jun 18, '08
hello ;) thanks for dropping by at the site. Feel free to visit from time to time for new design updates. Hope my creations brighten up your life. tc ;)
emestyneingelle wrote on May 23, '08
i forgot..if you post on my guestbook, it'd be better if you'd not mention anything about me helping you or anything coz my cousins might stumble upon my site and read it..and i don't want that to happen..hehe..you know why..
emestyneingelle wrote on May 20, '08
im happy a lot already know about you guys..ash, im still saving up to now. i really really hope i can send the money now but its still not enough. and im still looking for a way to be able to do so. we've pmed already so everything's quite clear. tell dondon again i love him =) and to kuya nico, tell him to take care. of course to you and marie also. if you're better, do take care of lolo and lola. God bless you all.
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